Friday, December 26, 2008

The New Sjogrens Syndrome Handbook or Easy to Swallow Easy to Chew Cookbook

The New Sjogren's Syndrome Handbook

Author: Daniel J Wallac

Afflicting nearly four million Americans, Sjogren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjogren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
The New Sjogren's Syndrome Handbook, Third Edition is a comprehensive and authoritative guide, produced by the Sjogren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on auto-immune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjogren's in an easily readable and understandable book. The handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice to assist those seeking information. Indeed, it offers a wide-ranging look at the many faces of Sjogren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as an appendix listing the resources available for patients with the disease. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjogren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
The most reliable and informative guide available, The New Sjogren's Syndrome Handbook, Third Editionis the first place for patients to look when they have questions about this little known but serious chronic disease.

Doody Review Services

Reviewer: Zarmeena Ali, MBBS (Washington University Medical Center)
Description: This book was last published in 1998 by the founder of the Sjogren's Syndrome Foundation, Elaine Harris, and her physician, Steven Carsons, MD. The handbook is now edited by Daniel Wallace, MD, to provide an easy to read resource about the syndrome for patients, their families, and healthcare professionals. The book is holistic, providing insight into the chronic psychosocial and medical issues that patients face in their daily lives.
Purpose: The purpose is to describe Sjogren's syndrome, update medical information, and address the concerns of patients with the disease. The authors are attempting to improve awareness about the disease, both to the community and medical profession.
Audience: The book is targeted at patients, families, and their healthcare providers. It does an adequate job of conveying essential information. The authors have met their objectives, although some chapters seem to be targeted at the medical community and other chapters are too simplistic for physicians, but appropriate for patients and their families.
Features: The book briefly discusses the history of Sjogren's Syndrome, and then delves into the common signs and symptoms and investigative tools to help aid in diagnosis. There is also a lengthy discussion of treatment modalities for Sicca complaints, and also alternative therapies. The appendixes are well organized, citing references that are useful for physicians. However, patients may find it difficult to get access to these papers, unless they go to a university medical library. The appendix for products for patients is useful as it lists phone numbers and websites to contact for products. There are several well organized tables throughout the book for a quick review of information.
Assessment: This is an interesting blend of information for both patients and rheumatologists. Some of the chapters are complex, with medical jargon that may be difficult for the layperson to understand. However, the book provides a handy resource of information and medications.

Rating

3 Stars from Doody




Table of Contents:
Preface
Introduction : why write a book on Sjogren's syndrome?
1The history of Sjogren's syndrome3
2What is Sjogren's syndrome?5
3Who develops Sjogren's syndrome?10
4What leads to dryness?15
5Sjogren's syndrome : a genetic and immunologic perspective24
6Generalized symptoms and signs of Sjogren's syndrome35
7The dry eye41
8The salivary glands, ears, nose, and larynx52
9The dry mouth : a dental perspective on Sjogren's58
10The internal organs in Sjogren's68
11Manifestations of connective tissue diseases seen in secondary Sjogren's81
12Useful studies : blood tests, imaging, biopsies, and beyond97
13How can I be sure it's really Sjogren's?106
14Treatment of dry eye115
15Treatment of dry mouth121
16Systemic therapies in Sjogren's130
17Taming Sjogren's : fighting fatigue, lifestyle factors, and nondrug management145
18Conquering Sjogren's159
19Complementary and alternative therapies for Sjogren's syndrome175
20How are drugs tested for Sjogren's?186
21Adjunctive measures, comorbidities, and reproductive issues in Sjogren's193
22Can I work?207
23What will happen to me?215
24Is there hope for a cure?219
AppResource materials232
AppProducts for Sjogren's patients238

Books about:

Easy-to-Swallow, Easy-to-Chew Cookbook: Over 150 Tasty and Nutritious Recipes for People Who Have Difficulty Swallowing

Author: Donna L Weihofen

Delicious and nourishing recipes that are easy to eat and swallow

The simple act of eating is a challenge for millions of people whose ability to chew and swallow has been compromised by the debilitating effects of age or disease. The Easy-to-Swallow, Easy-to-Chew Cookbook presents a collection of more than 150 nutritious recipes that make eating enjoyable and satisfying for anyone who has difficulty chewing or swallowing. It also shares helpful tips and techniques to make eating easier for the elderly and those with such diseases as Parkinson's, AIDS, or head and neck cancers.

Donna L. Weihofen, RD, MS (Verona, WI), is a nutritionist and the author of The Cancer Survival Cookbook (0-471-34668-3) and Magic Spices (Wiley: 0-471-34683-7).
JoAnne Robbins, PhD (Madison, WI), is founder of the University of Wisconsin's clinical Swallowing Service.
Paula A. Sullivan, MS, CCC-SLP (Madison, WI), is a speech pathologist who specializes in swallowing rehabilitation.



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